Palliative care is the maintenance of a decent standard of living for people with severe and incurable diseases. Components of palliative care: adequate analgesia, high-quality symptomatic drug treatment, psychological help. During palliative treatment, the patient is helped to learn self-care skills or the patient’s relatives are taught how to properly care for him.
Annually, 40 million people worldwide require palliative care, 78 percent of whom live in low- and middle-income countries.
The total need for palliative care in Ukraine in 2019 was 598.5 thousand people. 343.5 thousand adults 255 thousand children
*data from WHO, the State Statistics Service of Ukraine and the Center for Medical Statistics of Ukraine.
Due to the war, the situation worsened even more. Critically ill patients and their relatives are often left alone with the illness of a loved one.
“Dobrobut Foundation” created a program for systemic assistance to palliative patients and their families. In the “Dobrobut” medical network, there is a palliative care department, where experienced doctors and rehabilitation specialists work, there is access to high-quality pain relief, and the space is organized so that patients are in conditions identical to those at home.
Who needs palliative care?
- cancer patients in the last stages of the disease;
- people with diabetes and trophic ulcers;
- people after a stroke or injuries to the spine and limbs, people with Alzheimer’s disease and dementia;
- immobile patients with bedsores;
- patients with tracheo- and gastrostomies;
- weakened patients waiting for organ transplantation
- patients with amputated limbs.
The purpose of the program:
- Provide access to quality care and palliative treatment for people with serious illnesses from vulnerable population groups (including internally displaced persons);
- To improve the quality of life of families who take care of the seriously ill;
- To draw society’s attention to the problems of people with incurable diseases and their families, to form a culture of palliative care, to reduce the number of stereotypes about the lives of people with palliative diseases;
- To promote behavioral changes and establish in society the belief that quality palliative care is, first of all, concern for human dignity.
Components of the program and cost of services:
- Hospitalization to the palliative department;
- Symptomatic medical care;
- Selection and application of adequate analgesia;
- Teaching the patient self-care skills and (or) teaching family members and attendants care skills;
- Work with a physical therapist;
- Psychological help.
- Servicemen who were injured in the performance of official duties;
- Adults (from 18 years old) internally displaced persons who received an injury related to hostilities.
- servicemen who were injured in the performance of official duties;
- adults (from 18 years old) internally displaced persons who received an injury related to hostilities.
The list of documents required for participation in the consideration of the status of beneficiaries of the program:
- IDP certificate; documents on military service;
- documents confirming family ties with a military serviceman and documents on military service of a family member;
- previous medical documentation.
Beneficiary selection algorithm and program implementation stages:
- Employees of the Foundation review the application for participation in the program and confirm compliance with the requirements for the beneficiary.
- The Foundation manager informs the members of the special commission about the beneficiary’s candidacy, the commission considers the candidacy, studies the documents, medical and social factors and makes a decision.
- The beneficiary receives written confirmation of participation in the program.
- The beneficiary is scheduled for a convenient time to receive medical services.
- After providing the beneficiary with all medical services, an account is created for the Foundation from the “Dobrobut” medical network.
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- Subjective evaluation of the improvement of the quality of life of the patient and his relatives, adaptation of the patient to life with an incurable disease;
- Objective evaluation of the effectiveness of treatment and care based on the Pain Rating Scale;
- Increasing public awareness of the needs of people with incurable diseases, reducing stereotypes.